Creutzfeldt-Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation

The summary for the Creutzfeldt-Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Centers for Disease Control and Prevention, which is the U.S. government agency offering this grant.
Creutzfeldt-Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation: Background: Creutzfeldt-Jakob disease (CJD) is an incurable brain disorder that occurs with an incidence of one case per million annually. The majority of patients die within six months of illness onset. The disease causes damage to the brain leaving patients completely dependent on their caregivers for the most basic needs of daily living. In 1996, a variant form of CJD emerged in the United Kingdom, which was causally linked to bovine spongiform encephalopathy (BSE). Over 200 variant CJD cases have been identified worldwide, including three cases in the United States whose BSE exposure is believed to have occurred outside of the United States.

Purpose: The purpose of this program is to enhance support to family members of patients with a suspected or diagnosed case of human prion disease as well as enhance support for national surveillancefor CJD and its emerging variants by (1) providing family members of such patients with easy access to consultations with persons experienced and knowledgeable about practical issues related to this disease, 2) facilitating educational and other mutually beneficial interaction of researchers with family members of CJD patients (3) increasing general awareness about CJD and (4) increasing the number of autopsies of suspected CJD cases. This program addresses the “Healthy People 2010” focus area of Infectious Diseases.
Increasing awareness about CJD can be achieved by facilitating dialogue among CJD researchers, family members, and health care professionals. Increasing awareness empowers CJD families to make the appropriate decisions about the care of their loved ones. Learning more about prion diseases through autopsy study of CJD cases would assist in the determination of the various types of human prion disease present in the United States and their frequency of occurrence over time. Such study would also assist in the earlier recognition of potentially emerging forms of human prion disease and facilitate the development of improved pre-mortem diagnostic tests or treatments. Increasing autopsy rates is critical because CJD can only be confirmed through neuropathological study of brain tissue. Measurable outcomes of the program will be in alignment with the following Focus Area from Healthy People: Immunization and Infectious Diseases.


Federal Grant Title: Creutzfeldt-Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation
Federal Agency Name: Centers for Disease Control and Prevention
Grant Categories: Health
Type of Opportunity: Discretionary
Funding Opportunity Number: CDC-RFA-CK15-1504
Type of Funding: Cooperative Agreement
CFDA Numbers: 93.283
CFDA Descriptions: Centers for Disease Control and Prevention_Investigations and Technical Assistance
Current Application Deadline: Aug 14, 2015 Electronically submitted application
Original Application Deadline: Aug 14, 2015 Electronically submitted application
Posted Date: Jun 17, 2015
Creation Date: Jun 17, 2015
Archive Date: Sep 13, 2015
Total Program Funding: $70,000
Maximum Federal Grant Award: $70,000
Minimum Federal Grant Award: $70,000
Expected Number of Awards: 1
Cost Sharing or Matching: No
Applicants Eligible for this Grant
Native American tribal governments (Federally recognized)
Public and State controlled institutions of higher education
For profit organizations other than small businesses
Native American tribal organizations (other than Federally recognized tribal governments)
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Private institutions of higher education
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
Additional Information on Eligibility
Community Based Organizations, Faith-Based Organizations, Urban Indian Health Organizations and Tribal Epidemiology Centers
Link to Full Grant Announcement
Grant Announcement Contact
Nicole Goggins NAJ4@cdc.gov
Grants Policy

Centers for Disease Control and Prevention 770-488-2756
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