Data Management and Coordinating Center (DMCC) for the Rare Diseases Clinical Research Network (U54)

The summary for the Data Management and Coordinating Center (DMCC) for the Rare Diseases Clinical Research Network (U54) grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the National Institutes of Health, which is the U.S. government agency offering this grant.
Data Management and Coordinating Center (DMCC) for the Rare Diseases Clinical Research Network (U54): -Purpose. The NIH ORD and NINDS invite new and renewal cooperative agreement applications to continue the Data Management and Coordinating Center for the Rare Diseases Clinical Research Network (RDCRN). The Network has two main components: Rare Diseases Clinical Research Consortia (RDCRCs) and a Data Management and Coordinating Center (DMCC) (formerly known as Data Technology Coordinating Center, DTCC). The purpose of this Funding Opportunity Announcement (FOA) is to invite new and renewal cooperative agreement applications for the DMCC, which supports the RDCRN. A separate FOA has been published to invite new and renewal cooperative agreement applications for RDCRCs at http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-001.html. The purpose of the Network is to facilitate clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or phase I , II and II/III trials; 2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects; 4) a test bed for distributed clinical data management that incorporates novel approaches and technologies for data management, data mining, and data sharing across rare diseases, data types, and platforms; and 5) access to information related to rare diseases for basic and clinical researchers, academic and practicing physicians, patients, and the lay public. The DMCC (U54) cooperative agreement application will focus on issues relevant to item 4) and 5). -Mechanism of Support. This FOA will use the NIH U54 cooperative agreement award mechanism. Responsibility for the planning, direction, and execution of the proposed projects will be solely that of the applicant. The total project period for an application submitted in response to this FOA may not exceed 5 years. -Funds Available and Anticipated Number of Awards. The NIH ORD intends to commit approximately $875,000 in total cost (i.e direct cost plus Facilities and Administrative (F and A) costs) per year to fund one DMCC, which will support at least seven RDCRC. ORD and the participating institutes and centers (ICs) intend to fund approximately seven RDCRCs in response to the companion RFA-OD-08-001. Should the size of Network increase to approximately 10 consortia, the NIH ORD intends to commit $1.25 M per year to fund one DMCC.
Federal Grant Title: Data Management and Coordinating Center (DMCC) for the Rare Diseases Clinical Research Network (U54)
Federal Agency Name: National Institutes of Health
Grant Categories: Health
Type of Opportunity: Discretionary
Funding Opportunity Number: RFA-OD-08-002
Type of Funding: Cooperative Agreement
CFDA Numbers: 93.27393.853
CFDA Descriptions: Alcohol Research Programs 93.853 Extramural Research Programs in the Neurosciences and Neurological Disorders
Current Application Deadline: No deadline provided
Original Application Deadline: Apr 22, 2008
Posted Date: Feb 08, 2008
Creation Date: Feb 08, 2008
Archive Date: May 23, 2008
Total Program Funding: $875,000
Maximum Federal Grant Award:
Minimum Federal Grant Award:
Expected Number of Awards:
Cost Sharing or Matching: No
Applicants Eligible for this Grant
Special district governments Independent school districts Private institutions of higher education Native American tribal governments (Federally recognized) Small businesses Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Others (see text field entitled "Additional Information on Eligibility" for clarification) For profit organizations other than small businesses Native American tribal organizations (other than Federally recognized tribal governments) Public housing authorities/Indian housing authorities City or township governments County governments State governments Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Public and State controlled institutions of higher education
Additional Information on Eligibility
Foreign institutions are not eligible to apply. Eligible agencies of the Federal Government can apply. Faith-based or community-based organizations can apply.
Link to Full Grant Announcement
Information not provided
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