FY17National Lupus Outreach and Clinical Trial Education Program

The summary for the FY17National Lupus Outreach and Clinical Trial Education Program grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Office of the Assistant Secretary for Health, which is the U.S. government agency offering this grant.
FY17National Lupus Outreach and Clinical Trial Education Program: Lupus is an autoimmune disease that causes a host of symptoms and poses significant disease management and treatment challenges for patients and health care providers. In autoimmune disorders such as lupus, the immune system, which is designed to protect against infection, creates auto antibodies that attack the body's own tissues and organs. These auto antibodies cause inflammation which damages organs and tissue. Although science has made significant advances in the treatment and management of this disease, there is still no cure for lupus. In the United States, lupus disproportionately affects African Americans, Asians, and American Indians. People of African Caribbean or African descent may also be at higher risk. Lupus is two to three times more common in African American populations. The age range for individuals with lupus also varies widely. Lupus can occur in very young children or the elderly; however, the average age range for diagnosis of lupus is generally between 15 and 44. In this age group, women with lupus outnumber men 12 to 1. Because these are childbearing years, the impact of lupus on women is particularly problematic. National efforts to increase minority participation in clinical trials have been underway for the past twenty-five years, and recent evidence suggests that progress has been made in all phases of clinical trial research. To foster participation, researchers have explored barriers to participation such as patient mistrust, access to care, and perceptions of providers. Patient mistrust of medical research among minority populations, especially among African Americans, has been well documented. Patient beliefs that physicians might not fully explain the details of participation or would allow participation in clinical trials even if serious harm were possible is evidence that providers play a pivotal role in clinical trial participation. Access to health care, especially lack of insurance coverage, has also been suggested as a reason for lack of participation in clinical trials. However, large and significant increases in health insurance coverage among minority populations as a result of the Affordable Care Act suggest that lack of health coverage may no longer present as significant a barrier to care for the majority of minority populations. In comparison to non-Hispanic whites, African Americans and Hispanics are as likely to participate in clinical trials when asked, but they are often not asked to participate. Apart from patient factors, some research suggests that provider beliefs about minority populations may lower clinical trial participation. Differences in attitudes and beliefs affect treatment decisions, including referral of patients to medical procedures. Van Ryn and Burke (2000) report that physicians believe that African Americans are significantly less likely to adhere to difficult therapeutic protocols, which may deter some providers from even broaching the topic of clinical trial participation. Thus, efforts to address provider beliefs, attitudes, and practice regarding participation of minorities in clinical trials are a critical and necessary condition for increasing minority patient participation rates. The Lupus Program builds on OMH’s National Health Education Lupus Program (NHELP), funding for which ends June 30, 2017. NHELP’s purpose is to reduce lupus-related health disparities among racial and ethnic minority populations, particularly groups underrepresented in clinical research. The NHELP aims to increase and improve awareness, diagnosis and treatment outcomes for individuals living with lupus; and to develop and begin the implementation of an education program on clinical trials that educates and recruits minorities populations, particularly groups underrepresented in clinical research.
Federal Grant Title: FY17National Lupus Outreach and Clinical Trial Education Program
Federal Agency Name: Office of the Assistant Secretary for Health (HHS-OPHS)
Grant Categories: Health
Type of Opportunity: Discretionary
Funding Opportunity Number: MP-CPI-17-002
Type of Funding: Grant
CFDA Numbers: 93.137
CFDA Descriptions: Information not provided
Current Application Deadline: March 31st, 2017
Original Application Deadline: March 31st, 2017
Posted Date: December 30th, 2016
Creation Date: December 30th, 2016
Archive Date: April 30th, 2017
Total Program Funding: $2,000,000
Maximum Federal Grant Award: $325,000
Minimum Federal Grant Award: $250,000
Expected Number of Awards: 4
Cost Sharing or Matching: No
Last Updated: December 30th, 2016
Applicants Eligible for this Grant
Others (see text field entitled "Additional Information on Eligibility" for clarification.)
Additional Information on Eligibility
Eligible Applicants. State governments County Governments Special district governments Public and State controlled institutions of higher education Native American tribal governments (Federally recognized) Public Housing authorities/Indian housing authorities Native American tribal organizations (other than federally recognized tribal governments) Nonprofit with 501(c)(3) IRS status (other than institution of higher education) Nonprofit without 501(c)(3) IRS status (other than institution of higher education) Private Institutions of higher education For-profit organizations (other than small business) Small, minority, and women-owned businesses
Link to Full Grant Announcement
FY17National Lupus Outreach and Clinical Trial Education Program
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