National Newborn Screening and Genetics Resource Center

The summary for the National Newborn Screening and Genetics Resource Center grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Health Resources and Services Administration, which is the U.S. government agency offering this grant.

National Newborn Screening and Genetics Resource Center: The purpose of this initiative is to support a national newborn screening and genetics resource center. The center will develop and coordinate educational activities and information related to newborn screening that are responsive to information gaps identified by families and public health professionals and addresses cultural, linguistic, and literacy issues; standardize, maintain, and analyze quantitative laboratory and relevant clinical information to permit monitoring and evaluation of the impact of State and Territorial newborn screening programs. The center will incorporate health information technology advances to expand the capacity of the National Newborn Screening Information System to support short term monitoring of children with heritable conditions identified by newborn screening. It will also support activities that will strengthen the integration of child health information systems, laboratory performance and quality assurance, short term newborn screening follow-up and family/consumer and public health interactions at the community, state, regional, and national levels. It will provide a forum for timely and interactive communication between key stakeholders in the areas of newborn screening; maintain a newborn screening expert team to respond to state requests for consultation; support training opportunities for families and public health practitioners in the areas of newborn screening; and coordinate with the MCHB funded National Coordinating Center for the Regional Collaboratives to provide assistance to the MCHB Regional Genetic and Newborn Screening Service Collaboratives.