Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes

The summary for the Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Centers for Disease Control and Prevention, which is the U.S. government agency offering this grant.

Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes: This funding opportunity announcement (FOA) has two objectives. For both Objectives 1 and 2 CDC solicits U01 cooperative agreement applications to investigate factors that influence well-being for young adults (ages 15-24 years) with rare disorders in three key domains (health, education or work, and social participation). Such investigations are needed for states' cross-sectional surveillance efforts to document the outcomes and service use of these young adults (Objective 1). For this FOA, CDC will consider spina bifida, muscular dystrophy, and fragile x syndrome as prototypes of rare disorders. Through retrospective, longitudinal observation, these investigations may generate reasons for suboptimal outcomes among some of these young adults (Objective 2) and point the way toward changes that can improve the well-being of future young adults.