Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes

The summary for the Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes Federal Grant is detailed below. It contains information such as the Catalog of Federal Domestic Assistance (CFDA) number, who is eligible for the grant, how much grant money will be awarded, important deadlines, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed in the Grant Announcement Contact section. If these sections are incomplete, please visit the website of the government agency that is offering this grant.


	Federal Grant Title:	Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes
	CFDA Number:	93.283
	CFDA Description:	Centers for Disease Control and Prevention_Investigations and Technical Assistance
	Federal Agency Name:	Centers for Disease Control and Prevention
	Category of Funding Activity:	Health
	Category Explanation:	Information not provided
	Opportunity Category:	Discretionary
	Funding Opportunity Number:	RFA-DD-11-004
	Document Type:	Grants Notice
	Funding Instrument Type:	Cooperative Agreement
	Posted Date:	Dec 13, 2010
	Creation Date:	Dec 13, 2010
	Original Closing Date for Applications:	Mar 15, 2011 and made available to CDC for processing from eRA Commons on or before the deadline date. Applications must be submitted to and validated successfully by Grants.gov/eRA Commons no later than 5:00 PM Eastern Time. Note: HHS/CDC grant submission procedures do not provide a period of time beyond the application due date to correct any error or warning notices of noncompliance with application instructions that are identified by Grants.gov or eRA systems (i.e., error correction window).
	Current Closing Date for Applications:	Mar 15, 2011 and made available to CDC for processing from eRA Commons on or before the deadline date. Applications must be submitted to and validated successfully by Grants.gov/eRA Commons no later than 5:00 PM Eastern Time. Note: HHS/CDC grant submission procedures do not provide a period of time beyond the application due date to correct any error or warning notices of noncompliance with application instructions that are identified by Grants.gov or eRA systems (i.e., error correction window).
	Archive Date:	Apr 14, 2011
	Expected Number of Awards:	2
	Estimated Total Program Funding:	Information not provided
	Federal Grant Award Ceiling:	$0
	Federal Grant Award Floor:	$0
	Cost Sharing or Matching Requirement:	No

Applicants Eligible for this Grant: Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"
Additional Information on Eligibility: Information not provided
Grant Description: This funding opportunity announcement (FOA) has two objectives. For both Objectives 1 and 2 CDC solicits U01 cooperative agreement applications to investigate factors that influence well-being for young adults (ages 15-24 years) with rare disorders in three key domains (health, education or work, and social participation). Such investigations are needed for states' cross-sectional surveillance efforts to document the outcomes and service use of these young adults (Objective 1). For this FOA, CDC will consider spina bifida, muscular dystrophy, and fragile x syndrome as prototypes of rare disorders. Through retrospective, longitudinal observation, these investigations may generate reasons for suboptimal outcomes among some of these young adults (Objective 2) and point the way toward changes that can improve the well-being of future young adults.
Link to Full Grant Announcement: Information not provided
Grant Announcement Contact: Centers for Disease Control and Prevention (CDC) Procurement and Grants Office (PGO) Technical Information and Management Section (TIMS) Phone 770-488-2700

General Email [pgotim@cdc.gov]
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