Regional Genetic and Newborn Screening Services

The summary for the Regional Genetic and Newborn Screening Services grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Health Resources and Services Administration, which is the U.S. government agency offering this grant.
Regional Genetic and Newborn Screening Services: Project 1: The Genetic and Newborn Screening Service Regional Collaboratives National Coordinating Center The Genetic and Newborn Screening Service Regional Collaboratives' National Coordinating Center (NCC) will facilitate, coordinate and evaluate the implementation of activities carried out by the MCHB-funded Genetic and Newborn Screening Regional Collaboratives (RCs). It will serve as the primary vehicle for information sharing among the RCs and for the development, implementation, and dissemination of projects of interregional and national significance. The NCC will also serve as the bridge between the RCs and MCHB; consumer organizations; health care professionals and professional organizations; research entities; State, regional, and national public health organizations; and policy makers. Working with the RCs and partners, the NCC will play a key role in identifying, prioritizing, and addressing issues of importance regarding access to and utilization of genetic services at the National, State, and community levels. Specifically, the NCC will: develop and coordinate educational and information dissemination activities (utilizing distance learning technology wherever possible) related to genetic medicine that are responsive to the gaps identified by the RCs and that address cultural, linguistic, and health literacy issues; design, develop and evaluate health information technology strategies for enhancing regional and interregional capacity for overseeing and coordinating long term monitoring of children with heritable conditions identified by newborn screening; analyze and address policies relevant to the delivery, and financing of genetic services; provide an ongoing forum for timely, interactive communication between key stakeholders in the areas of genetic medicine; and policy; support national educational and training opportunities for families, health care providers, and public health practitioners in the area of genetic medicine; provide for the dissemination of best practices among the RCs and the States and communities they serve; and coordinate the provision of assistance to the RCs by other MCHB-funded resources. Funds available: $800,000 for the first year for one cooperative agreement. The cooperative agreement will be funded for five (5) years, subject to the availability of funding for years 2 to 5 and satisfactory grantee performance. Project 2: The Genetic and Newborn Screening Service Regional Collaboratives (RC) The seven RCs will enhance and support the genetic and newborn screening service capacity of States across the nation. The RCs are expected to improve the quality of health of children and their families by promoting the translation of genetic medicine into public health and health care services. They will take a regional approach to addressing the maldistribution of genetic resources and the problems families and primary health care providers have in accessing and utilizing those resources. Their primary goals are: to strengthen communication and collaboration among public health, families, primary care providers, and genetic medicine and other subspecialty providers; and to ensure that children with heritable disorders and their families have access to quality care and appropriate genetic expertise and information in the context of a medical home that provides accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective care; and quantatively and qualitatively evaluate outcomes of projects undertaken to accomplish their goals. In addition, the RCs are required to design, develop, and implement practice models and systems for delivering recommended genetic screening and testing, diagnosis, treatment, and short- and long-term follow-up services to families and individuals with heritable disorders, including genetic conditions identified during and beyond the newborn period. These models should address the needs of the wide variety of populations, e.g., urban and rural, found in the regions and the States within the regions and, where possible, should incorporate distance learning strategies. Special attention should be paid to the development of effective practice models for adolescents and young adults with heritable diseases who are transitioning from pediatric to adult health care. The RCs will also focus on specific laboratory quality-improvement projects such as enhancing laboratory test performance and expanding and harmonizing newborn screening panels across the region. RCs will participate (both regionally and nationally) in health information technology activities such as data collection and information sharing and will focus on the creation of and participation in regional and national databases. RC activities include monitoring health outcomes of infants and children identified with heritable disorders in newborn screening programs; evaluating program performance; and participating in evaluation studies for treatment protocols. Issues of informed consent and family acceptance of screening and treatment should be included as part of these proposed activities. Each RC will be expected, through the NCC, to share those projects that have potential interregional and national significance with the other RCs and their partners. The RCs will also participate, through conference calls, working groups, meetings, and other mechanisms employed by the NCC, in identifying, prioritizing, and addressing issues of importance regarding access to and utilization of genetic services at the National, State, and community levels. The applicant serves one of the seven regions identified: Region 1: CT, MA, ME, NH, RI, VT ; Region 2: DE, MD, NY, NJ, PA, PR, VA, VI, WV ; Region 3: AL, FL, GA, LA, MS, NC, SC, TN; Region 4: IL, IN, KY, MI, MN, OH, WI; Region 5: AR, IA, KS, MO, ND, NE, OK, SD, TX; Region 6: AZ, CO, MT, NM, UT, WY; and Region 7: AK, CA, HI, ID, NV, OR, WA, Pacific Basin. Funds available: $5,200,000 for seven cooperative agreements. Funds available per cooperative agreement per year range from $500,000 to $1,000,000. The award amount is dependent on the activities reflected within the project narrative and budget. The cooperative agreements will be funded for five years, subject to the availability of funding for years 2-5 and satisfactory grantee performance.
Federal Grant Title: Regional Genetic and Newborn Screening Services
Federal Agency Name: Health Resources and Services Administration
Grant Categories: Health
Type of Opportunity: Discretionary
Funding Opportunity Number: HRSA-07-016
Type of Funding: Cooperative Agreement
CFDA Numbers: 93.110
CFDA Descriptions: Maternal and Child Health Federal Consolidated Programs
Current Application Deadline: No deadline provided
Original Application Deadline: Jan 05, 2007
Posted Date: Oct 23, 2006
Creation Date: Oct 24, 2006
Archive Date: Feb 04, 2007
Total Program Funding: $6,000,000
Maximum Federal Grant Award:
Minimum Federal Grant Award:
Expected Number of Awards: 8
Cost Sharing or Matching: No
Applicants Eligible for this Grant
Others (see text field entitled "Additional Information on Eligibility" for clarification)
Additional Information on Eligibility
As cited in 42 CFR part 51a.3 (a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b), and a faith based and community based organization, is eligible to apply for this Federal funding.
Grant Announcement Contact
Jill Shuger, M.S.
Public Health Analyst
Telephone: 301-443-1080
Fax: 301-443-8604
jshuger@hrsa.gov HRSA
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