Sickle Cell Disease Newborn Screening Program

The summary for the Sickle Cell Disease Newborn Screening Program grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Health Resources and Services Administration, which is the U.S. government agency offering this grant.
Sickle Cell Disease Newborn Screening Program: This announcement solicits applications for the Sickle Cell Disease Newborn Screening Program (SCDNBSP) to enhance CBO¿s efforts to provide follow-up services for sickle cell patients and support sickle cell disease counseling, education, referrals to a medical home, and other support services.  The goals of the SCDNBSP are for  a national sickle cell organization, in part by working with regional and local sickle cell community-based organizations (CBOs) to: 1) create a national effort to develop, implement, and maintain a national strategy to identify and assess the care quality and outcomes of individuals with sickle cell disease in order to assure access to comprehensive care; 2) increase the use of sickle cell educator/counselors (e.g., community health workers); and 3) increase the number of patients with care coordination, follow-up and referral to medical homes for sickle cell patients.  The sickle cell educator/counselors will provide care coordination to sickle cell patients in communities by educating patients about sickle cell, linking patients to medical homes and assisting them with other resources in the community to address their health care quality and outcomes.  A regional approach will be used for the Sickle Cell Disease Newborn Screening Program.  The Sickle Cell Disease Treatment Demonstration Program (SCDTDP) uses a regional model, and the applicant is expected to work collaboratively with the SCDTDP awardees. 

The program will support one (1) applicant, that will be expected to have a national reach and to enter into subaward agreements with at least one sickle cell CBO in each region with the capacity to serve as a regional lead (See regions in the Background Section below).  The CBO regional leads will be expected to serve as a shared resource for other CBOs in the region and provide technical assistance to implement efforts to enhance outreach and education to the sickle cell community.  If a region does not have a sickle cell CBO with the capacity to lead the effort alone, multiple CBOs in the region may work collaboratively as the lead.  Also, if a region or subset of a region lacks a CBO that could perform the duties of the program, a medical center-based program that offers outreach and education may be used.  The applicant is expected to dedicate a significant proportion of the budget directly to the SCDNBSP regions to support the activities of this program.

The successful applicant will: 1) serve as the lead organization for the national effort; 2) work with HRSA and CBOs to develop, implement, and maintain strategies to identify patients and assess their care quality and outcomes to assure access to comprehensive care, and 3) provide technical assistance for CBOs in developing strategies to increase the use of sickle cell educator/counselors.  The CBO regional leads will identify other CBOs and partners in each state of their region and, where applicable, work with the SCDTDP Regional Collaborative in their region to increase the number of patients receiving care coordination and referral to medical homes.
Federal Grant Title: Sickle Cell Disease Newborn Screening Program
Federal Agency Name: Health Resources and Services Administration
Grant Categories: Health
Type of Opportunity: Discretionary
Funding Opportunity Number: HRSA-15-078
Type of Funding: Cooperative Agreement
CFDA Numbers: 93.110
CFDA Descriptions: Maternal and Child Health Federal Consolidated Programs
Current Application Deadline: Jan 9, 2015
Original Application Deadline: Jan 9, 2015
Posted Date: November 25th, 2014
Creation Date: Nov 25, 2014
Archive Date: Mar 10, 2015
Total Program Funding: $2,679,000
Maximum Federal Grant Award: $2,679,000
Minimum Federal Grant Award: $0
Expected Number of Awards: 1
Cost Sharing or Matching: No
Category Explanation
https://grants.hrsa.gov/webExternal/SFO.asp?ID=ae38284f-ae84-4f10-becb-c32b8867498c
Applicants Eligible for this Grant
Native American tribal organizations (other than Federally recognized tribal governments)
Others (see text field entitled "Additional Information on Eligibility" for clarification)
Additional Information on Eligibility
As cited in 42 CFR Part 51a.3(a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450(b)), is eligible to apply for this federal funding.  If otherwise eligible, community and faith-based organizations are eligible to apply.  Awardees currently receiving funding under the SCDTDP are ineligible to receive funding under this announcement.
Grant Announcement Contact
Department of Health and Human Services, Health Resources and Services Administration, HRSA Grants Application Center, 910 Clopper Road, Suite 155 South, Gaithersburg, MD, 20878 EIvy@hrsa.gov
Contact Edward Donnell Ivy, M.D., M.P.H. at (301) 44-3-97 Ext. 75 or email EIvy@hrsa.gov

Health Resources and Services Administration 301-443-7432
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