Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
The summary for the Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida grant is detailed below.
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Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida: The overall purpose of this FOA is to identify and facilitate the provision of effective clinical care and needed educational/informational resources for people living with SB. This FOA is comprised of three (3) components: Component A solicits applications to implement a plan to develop and implement the infrastructure for Spina Bifida Clinical Care Monitoring and Tracking (CCMT). The system will monitor, track and evaluate patterns of care provided in SB clinics with the goal of improving and standardizing care through evidence-based effectiveness analysis. This plan will result in a CCMT that coordinates communication between SB clinics and SB chapters, provides input into research priorities for the NSBPR, and advocates for the adoption of best practices identified via the NSBPR and the UPPF as well as by other avenues. Component B solicits applications to continue the collection of longitudinal data on children and adults with SB. These data will be used to promote quality of care by determining best practices through comparing differences in interventions and outcomes among clinics and to propose hypotheses to develop and test using NSBPR data. Component C solicits applications to implement and evaluate a best practice protocol that can move toward an evidence-based protocol to manage the urinary system in infants and young children with SB so that kidney function is preserved as a positive health outcome. Applicants applying for this component of the FOA must also apply for component B. Only applicants funded under Component B will be considered for funding under Component C.
Federal Grant Title: | Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida |
Federal Agency Name: | Centers for Disease Control and Prevention |
Grant Categories: | Health |
Type of Opportunity: | Discretionary |
Funding Opportunity Number: | RFA-DD14-002 |
Type of Funding: | Cooperative Agreement |
CFDA Numbers: | 93.315 |
CFDA Descriptions: | Rare Disorders: Research, Surveillance, Health Promotion, and Education |
Current Application Deadline: | Mar 7, 2014 Letter of Intent Due Date: February 7 |
Original Application Deadline: | Mar 7, 2014 Letter of Intent Due Date: February 7 |
Posted Date: | Jan 7, 2014 |
Creation Date: | Jan 7, 2014 |
Archive Date: | Apr 6, 2014 |
Total Program Funding: | $10,500,000 |
Maximum Federal Grant Award: | $895,000 |
Minimum Federal Grant Award: | $0 |
Expected Number of Awards: | 30 |
Cost Sharing or Matching: | No |
- Applicants Eligible for this Grant
- Others (see text field entitled "Additional Information on Eligibility" for clarification)
- Additional Information on Eligibility
- Eligible Organizations
Higher Education Institutions:
Public/State Controlled Institutions of Higher Education
Private Institutions of Higher Education
The following types of Higher Education Institutions are always encouraged to apply for CDC support as Public or Private Institutions of Higher Education:
Hispanic-serving Institutions
Historically Black Colleges and Universities (HBCUs)
Tribally Controlled Colleges and Universities (TCCUs)
Alaska Native and Native Hawaiian Serving Institutions
Nonprofits Other Than Institutions of Higher Education
Nonprofits (Other than Institutions of Higher Education)
For- Profit Organizations
Small Businesses
For-Profit Organizations (Other than Small Businesses)
Governments
State Governments
County Governments
City or Township Governments
Special District Governments
Indian/Native American Tribal Governments (Federally Recognized)
Indian/Native American Tribal Governments (Other than Federally Recognized)
Eligible Agencies of the Federal Government
U.S. Territory or Possession
Other
Native American tribal organizations (other than Federally recognized tribal governments)
Faith-based or Community-based Organizations
Regional Organizations
Bona Fide Agents: a Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If applying as a bona fide agent of a state or local government, a legal, binding agreement from the state or local government as documentation of the status is required. Attach with "Other Attachment Forms" when submitting via www.grants.gov.
Federally Funded Research and Development Centers (FFRDCs): FFRDCs are operated, managed, and/or administered by a university or consortium of universities, other not-for-profit or nonprofit organization, or an industrial firm, as an autonomous organization or as an identifiable separate operating unit of a parent organization. A FFRDC meets some special long-term research or development need which cannot be met as effectively by an agencys existing in-house or contractor resources. FFRDC's enable agencies to use private sector resources to accomplish tasks that are integral to the mission and operation of the sponsoring agency. For more information on FFRDCs, go to http://ecfr.gpoaccess.gov/cgi/t/text/text-idx?c=ecfr&sid=512ff78311f427c00454772dcf21523a&rgn=div8&view=text&node=48:1.0.1.6.34.0.1.18&idno=48.
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Technical Information Management Section (TIMS)
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