Sickle Cell Disease Program Cooperative Agreement

The summary for the Sickle Cell Disease Program Cooperative Agreement grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Health Resources and Services Administration, which is the U.S. government agency offering this grant.

Sickle Cell Disease Program Cooperative Agreement: The purpose of this grant activity is to establish a cooperative agreement to address issues regarding newborn screening and follow-up of infants with Sickle Cell disease and trait babies. This initiative will provide models, best practices, and dissemination strategies for ensuring optimal follow-up and management of babies identified with Sickle Cell disease and/or traits. This cooperative agreement is to fund a national Sickle Cell disease organization that will partner with families, community-based Sickle Cell disease organizations, health care professionals, State agencies including State Title V and newborn screening programs, and MCHB and its National Newborn Screening and Genetics Resource Center. It will serve as a national Sickle Cell disease coordinating center to deal with issues related to educational materials, a common data base, evaluation, counselor certification, partnership building and information exchange. It will also support implementation of the community-based Sickle Cell disease projects funded by this initiative and provide a community forum between MCHB and the Sickle Cell disease community to identify and prioritize issues important to the Sickle Cell disease community.