Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts

The summary for the Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Centers for Disease Control and Prevention ERA, which is the U.S. government agency offering this grant.

Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts: This NOFO is intended to support research on lupus through a 2-component cooperative agreement: Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup): This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas: The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, and Treatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, and Health care access and gaps that adults with lupus experience, and Disparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes. Component B: (A Pediatric Lupus Registry with Longitudinal Follow up): This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas: The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, and Treatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, and Health care access and gaps that children with lupus experience, and Disparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.

Federal Grant Title:	Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Federal Agency Name:	Centers for Disease Control and Prevention ERA (HHS-CDC-HHSCDCERA)
Grant Categories:	Health
Type of Opportunity:	Discretionary
Funding Opportunity Number:	RFA-DP-19-003
Type of Funding:	Cooperative Agreement
CFDA Numbers:	93.283
CFDA Descriptions:	Information not provided
Current Application Deadline:	March 8th, 2019
Original Application Deadline:	March 8th, 2019
Posted Date:	January 4th, 2019
Creation Date:	January 4th, 2019
Archive Date:	April 7th, 2019
Total Program Funding:	$10,500,000
Maximum Federal Grant Award:	$1,000,000
Minimum Federal Grant Award:	$700,000
Expected Number of Awards:	4
Cost Sharing or Matching:	No
Last Updated:	January 4th, 2019

Applicants Eligible for this Grant: State governments - County governments - City or township governments - Special district governments - Independent school districts - Public and State controlled institutions of higher education - Native American tribal governments (Federally recognized) - Public housing authorities/Indian housing authorities - Native American tribal organizations (other than Federally recognized tribal governments) - Nonprofits having a 501 (c) (3) status with the IRS, other than institutions of higher education - Nonprofits that do not have a 501 (c) (3) status with the IRS, other than institutions of higher education - Private institutions of higher education - For-profit organizations other than small businesses - Small businesses - Others (see text field entitled "Additional Information on Eligibility" for clarification.) - Unrestricted (i.e., open to any type of entity below), subject to any clarification in text field entitled "Additional Information on Eligibility"
Additional Information on Eligibility: Eligibility applicants must meet the following criteria: Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup): Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus. Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities). Component B: (A Pediatric Lupus Registry with Longitudinal Followup): Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based. If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.
Grant Announcement Contact: Jessie Hood
[email protected]
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