Screening for Heritable Disorders in Children: Efficacy from a Family/Consumer Perspective

The summary for the Screening for Heritable Disorders in Children: Efficacy from a Family/Consumer Perspective grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Health Resources and Services Administration, which is the U.S. government agency offering this grant.

Screening for Heritable Disorders in Children: Efficacy from a Family/Consumer Perspective: The purpose of this initiative is to address the need to maintain and/or enhance the involvement of parents and families in the newborn screening system as the number of newborn screenable conditions expand. Increased knowledge of family perspectives will assist newborn screening programs in planning for and supporting the constant involvement of parents and families. It is expected that the grants will rigorously address the current knowledge gap in this area. Potential topics of studies include measurement of parental behavior after receiving false positive screening results, assessment of potential harm on children and their families with notification of false positive screening results, determination of the information that would be necessary for parental decision making about screening for conditions that may not have a medically proven treatment, assessment of the impact of carrier identification, particularly on diverse populations and what information may be desired by families, and determination of changes in parental attitudes and responses with increased education and knowledge about newborn screening.