Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance

The summary for the Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Centers for Disease Control NCBDDD, which is the U.S. government agency offering this grant.
Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance: Eligible applicants should have the infrastructure and capacity to identify, collect, and disseminate information on outcomes associated with persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults. Specifically, this entails: 1) access to a population of children, adolescents, and young adults with PTD/TS; 2) expertise in identification of PTD/TS; and 3) capacity to collect and analyze survey data and summarize and disseminate findings.CDC proposes to allocate funds to implement a Notice of Funding Opportunity (NOFO), Surveillance of Public Health Burden of Persistent Tic Disorders including Tourette Syndrome in Children, Adolescents, and Young Adults. The purpose of the NOFO is to conduct surveillance of persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults to: • Document the public health burden (i.e., outcomes) of these disorders • Generate data that can be used to inform education and outreach activities to improve the health and well-being of individuals with tic disorders and their families. Proposed activities for this NOFO include the following: • Collaborate with CDC and other NOFO recipients to identify measures for priority areas of burden including cost, healthcare transition, suicidality, and co-occurring disorders. • Collaborate with CDC and other recipients to determine a standard survey and surveillance protocol across sites and shared data approach. • Collect and share de-identified data with CDC. • Collaborate with CDC and other NOFO recipients to analyze, summarize, and disseminate multi-site findings.
Federal Grant Title: Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance
Federal Agency Name: Centers for Disease Control NCBDDD (HHS-CDC-NCBDDD)
Grant Categories: Health
Type of Opportunity: Discretionary
Funding Opportunity Number: CDC-RFA-DD-24-0083
Type of Funding: Cooperative Agreement
CFDA Numbers: 93.073
CFDA Descriptions: Information not provided
Current Application Deadline: April 15th, 2024
Original Application Deadline: April 15th, 2024
Posted Date: February 15th, 2024
Creation Date: February 15th, 2024
Archive Date: May 16th, 2024
Total Program Funding: $3,750,000
Maximum Federal Grant Award: $750,000
Minimum Federal Grant Award: $150,000
Expected Number of Awards: 3
Cost Sharing or Matching: No
Last Updated: February 15th, 2024
Applicants Eligible for this Grant
State governments - County governments - City or township governments - Special district governments - Independent school districts - Public and State controlled institutions of higher education - Native American tribal governments (Federally recognized) - Nonprofits having a 501 (c) (3) status with the IRS, other than institutions of higher education - Nonprofits that do not have a 501 (c) (3) status with the IRS, other than institutions of higher education - Private institutions of higher education - For-profit organizations other than small businesses - Small businesses - Unrestricted (i.e., open to any type of entity below), subject to any clarification in text field entitled "Additional Information on Eligibility"
Additional Information on Eligibility
The applicant must provide evidence of access to clinic-based samples of children, adolescents, and young adults (ages 6-24 years) with a current persistent tic disorder including Tourette Syndrome (PTD/TS) and the ability to collect data on this population.The applicant must include in the application a table of contents, project abstract, project narrative, (including work plan) budget narrative, letters of support, CVs/resumes, organizational charts, a copy of their indirect cost rate agreement, and a data management plan demonstrating secure handling and storage of data. Assurances should be provided that data will be kept on restricted and/or password-protected systems that only individuals working on the respective surveillance system can access. Failure to include these documents will cause the application to be deemed nonresponsive and not be passed on for further review.The award ceiling for this NOFO is $750,000. CDC will consider any application requesting an award higher than this amount as nonresponsive, and it will receive no further review.
Grant Announcement Contact
Mary Helen Witten
[email protected]
[email protected]
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