Sickle Cell Data Collection Program
The summary for the Sickle Cell Data Collection Program grant is detailed below.
This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants.
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If any section is incomplete, please visit the website for the Centers for Disease Control NCBDDD, which is the U.S. government agency offering this grant.
Sickle Cell Data Collection Program: Sickle cell disease (SCD), estimated to affect 90,000 to 100,000 Americans, is the most common inherited blood disorder in the United States. Major complications of SCD include anemia, debilitating pain, infection, stroke, and organ damage. Poor health outcomes may be a result of limited or no access to comprehensive care, especially during their adult years, and limited treatment options. There is no national surveillance of SCD. Consequently, there are large gaps in our current understanding of the natural course of the disease and its variable manifestations from one patient to the next. There is also a lack of consistent scientific data to facilitate informed decision-making that may lead to significant health improvements in the SCD community. A population-based surveillance system will allow for the identification of individuals with SCD and the standardized collection of information about their clinical history. Since 2015, CDC has managed the Sickle Cell Data Collection (SCDC) program, a state wide, population-based surveillance system, in two states (https://www.cdc.gov/ncbddd/hemoglobinopathies/scdc.html). SCDC allows these states to analyze the health information of individuals with SCD and identify crucial gaps in their diagnosis, treatment, and access to care. The results of these analyses inform stakeholders about how these gaps can be filled through policy changes, improved health care practices, and new treatments. SCDC data have played a role in the opening of new SCD clinics, the educations of health care providers, state policies related to health care for SCD, and the enhancement of federally-funded activities across HHS. Through this NOFO, CDC plans to fund up to five recipients for a three-year period of performance to participate in the implementation of a state-wide SCD surveillance system. NOFO activities will include 1) surveillance team engagement, data collection, and annual reporting of aggregate level data (Core Component) and 2) analysis of SCD surveillance data and dissemination of results (Supplemental Component). Applicants must apply for the Core Component. Additionally, applicants can choose to apply for the Supplemental Component via a single application. This NOFO will improve and expand the current SCDC efforts by increasing the number of states to implement the program. Each state has a unique demographic makeup, distinct health care policies, and challenges related to access to care; all of these factors play a large role in the outcomes and experiences of individuals with SCD. This NOFO will enhance understanding of the incidence, prevalence, demographics, health care utilization patterns, and mortality of SCD in the United States.
Federal Grant Title: | Sickle Cell Data Collection Program |
Federal Agency Name: | Centers for Disease Control NCBDDD (HHS-CDC-NCBDDD) |
Grant Categories: | Health |
Type of Opportunity: | Discretionary |
Funding Opportunity Number: | CDC-RFA-DD20-2003 |
Type of Funding: | Cooperative Agreement |
CFDA Numbers: | 93.080 |
CFDA Descriptions: | Information not provided |
Current Application Deadline: | May 11th, 2020 |
Original Application Deadline: | May 11th, 2020 |
Posted Date: | March 4th, 2020 |
Creation Date: | March 4th, 2020 |
Archive Date: | June 10th, 2020 |
Total Program Funding: | $4,500,000 |
Maximum Federal Grant Award: | $500,000 |
Minimum Federal Grant Award: | $100,000 |
Expected Number of Awards: | 6 |
Cost Sharing or Matching: | No |
Last Updated: | March 4th, 2020 |
- Applicants Eligible for this Grant
- State governments - County governments - City or township governments - Special district governments - Independent school districts - Public and State controlled institutions of higher education - Native American tribal governments (Federally recognized) - Public housing authorities/Indian housing authorities - Native American tribal organizations (other than Federally recognized tribal governments) - Nonprofits having a 501 (c) (3) status with the IRS, other than institutions of higher education - Nonprofits that do not have a 501 (c) (3) status with the IRS, other than institutions of higher education - Private institutions of higher education - For-profit organizations other than small businesses - Small businesses - Others (see text field entitled "Additional Information on Eligibility" for clarification.) - Unrestricted (i.e., open to any type of entity below), subject to any clarification in text field entitled "Additional Information on Eligibility"
- Additional Information on Eligibility
- Applicants must apply for the Core Component to be considered for the Optional Component. If an applicant applies for the Optional Component only, their application will not be reviewed.
- Grant Announcement Contact
- Mary Hulihan
[email protected]
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