Sudden Death in the Young (SDY) Registry

The summary for the Sudden Death in the Young (SDY) Registry grant is detailed below. This summary states who is eligible for the grant, how much grant money will be awarded, current and past deadlines, Catalog of Federal Domestic Assistance (CFDA) numbers, and a sampling of similar government grants. Verify the accuracy of the data FederalGrants.com provides by visiting the webpage noted in the Link to Full Announcement section or by contacting the appropriate person listed as the Grant Announcement Contact. If any section is incomplete, please visit the website for the Chronic Disease Prevention and Health Promotion, which is the U.S. government agency offering this grant.

Sudden Death in the Young (SDY) Registry: SDY has a devastating impact on families, care providers, and the community, and attracts significant public and media attention. The most common diagnoses that increase risk for SDY include hypertrophic cardiomyopathy, coronary artery anomalies of wrong sinus origin, arrhythmogenic right ventricular cardiomyopathy, ion channelopathies, and genetic forms of epilepsy such as Dravet Syndrome. In up to 30% of cases of SCDY no specific diagnosis is found (autopsy negative). Sudden cardiac death has been documented at all ages and may be associated with competitive athletics. Approximately 10-15% of Sudden Infant Death Syndrome (SIDS) cases may be due to ion channelopathies. Similarly, SUDEP has been documented at all ages, and several risk factors have been identified, including some cases originating with ion channelopathies. Rational policy development in the area of screening and prevention is currently limited by the lack of prospectively defined epidemiological data, including incidence rates and etiology for SDY. To address this knowledge gap, CDC, along with federal partners the National Heart, Lung, and Blood Institute (NHLBI) and the National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health (NIH) have developed the SDY Registry to explore and provide greater understanding of SDY.